Based in Ainsworth, NE, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, along with their families and care providers. Our Family Support team is here to offer accurate information and compassionate guidance right when it's needed most. We offer a range of services, including detailed nutritional education and meal planning, behavior management support, and assistance navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We encourage families in need of support to reach out through our online chapter locator or connect with us via email to join our Facebook Support Groups, where community and shared experiences thrive.