Located in Columbus, NE, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals with Prader-Willi syndrome (PWS), along with their families and caregivers, during the critical moments following diagnosis. Our Family Support team offers a wealth of resources, including accurate information, parent mentoring, nutritional education, meal planning, and behavior management support. We are committed to guiding families through the often complex applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). If you are seeking assistance, we invite you to connect with your local PWSA chapter through our online chapter locator or reach out via email to join one of our supportive Facebook groups.