Located in Hebron, NE, the Prader-Willi Syndrome Association (PWSA) is dedicated to supporting individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to provide reliable information and comprehensive assistance right from the moment of diagnosis. We offer a range of services including parent mentoring, nutritional education, meal planning, and behavior management support, all designed to empower families in navigating the challenges that come with this condition. Additionally, we assist with the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To engage with our services, families can easily find their local PWSA chapter through our online chapter locator or reach out to us via email to join one of our supportive Facebook groups.