Based in Hampton, NH, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering vital support to individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to providing accurate information and comprehensive assistance from the moment of diagnosis. We offer a range of services including parent mentoring, nutritional education and meal planning, behavior management support, as well as guidance navigating the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking support, we encourage you to connect with your local PWSA chapter through our online chapter locator or reach out via email to join one of our Facebook Support Groups.