Based in Wolfeboro, NH, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to offer accurate information and a comprehensive suite of services at the critical moment of diagnosis. We empower families through personalized parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we assist families in navigating the complexities of Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. For assistance, families can connect with their local PWSA chapter through our online locator or reach out via email to join one of our supportive Facebook groups.