Located in Estancia, NM, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support and resources to individuals diagnosed with Prader-Willi syndrome, as well as their families and caregivers. Our Family Support team is committed to offering accurate information and comprehensive assistance right from the moment of diagnosis. We provide a range of services including parent mentoring, nutritional education and meal planning, behavior management support, and guidance on navigating applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can connect with us through our local PWSA chapter or by reaching out via email to explore our supportive Facebook groups, ensuring that no one faces this journey alone.