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Family Support

Prader-Willi Syndrome Association (PWSA) Albany, OR

About Family Support

Located in Albany, Oregon, the Prader-Willi Syndrome Association (PWSA) is dedicated to uplifting individuals affected by Prader-Willi syndrome through compassionate care and essential resources. Our Family Support program is a vital lifeline for families navigating the challenges that come with this diagnosis, offering accurate information, caring parent mentoring, and tailored nutritional education and meal planning. We also provide valuable assistance with behavior management strategies and guide families through the application and appeals process for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For personalized support, families can connect with their local PWSA chapter using our online chapter locator or join one of our supportive Facebook groups via email. We are here to support you on this journey toward understanding and managing Prader-Willi syndrome.

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Location
Albany, OR
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Family Support

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