Located in Bandon, Oregon, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, as well as their families and caregivers. Our Family Support team offers vital resources, including accurate information, parent mentoring, nutritional education, and guidance on meal planning. We understand the unique challenges that come with this diagnosis, so we also provide behavior management support and assistance with navigating the application processes for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite families to reach out through our local chapter or email us to join one of our supportive Facebook groups, ensuring you have the information and community connection you need during this journey.