Based in Gresham, OR, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering essential support to individuals affected by Prader-Willi syndrome, alongside their families and caregivers. Our Family Support team stands ready with reliable resources and compassionate guidance right at the time of diagnosis, ensuring families never feel alone on this journey. We provide a range of services, including detailed information and support, parent mentoring, nutritional education, and meal planning. Additionally, we assist with behavior management strategies and navigate the complex application and appeals processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). If you’re seeking support, reach out to your local PWSA chapter through our online chapter locator or join one of our Facebook Support Groups for community connection.