Located in Molalla, Oregon, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support and resources for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to ensure that families receive accurate information and compassionate guidance at the crucial moment of diagnosis. We offer a variety of programs, including parent mentoring, nutritional education with meal planning, behavior management support, and assistance with the complexities of Medicaid, SSI, and SSDI applications and appeals. For support, families can connect with their local PWSA chapter through our online locator or reach out via email to join one of our supportive Facebook groups, fostering a community where care and understanding thrive.