Located in Oregon City, OR, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals with Prader-Willi syndrome and their families. Our Family Support team offers reliable information and compassionate assistance during the critical time of a diagnosis, focusing on the unique needs of each family. We provide nutritional education and meal planning, behavior management support, and help with navigating application and appeal processes for Medicaid, insurance, and Social Security benefits such as Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI). By fostering a supportive community, we empower families through parent mentoring and access to valuable resources. To connect with us, please use the online chapter locator or reach out via email to join one of our Facebook Support Groups.