Based in Parkston, SD, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, along with their families and caregivers. At PWSA, we understand the challenges that come with a diagnosis, and our Family Support team is here to offer accurate information and comprehensive assistance. Our program features parent mentoring, nutritional education, meal planning guidance, behavior management support, and help navigating application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can easily connect with the local PWSA chapter through our online chapter locator or by reaching out via email to join one of our Facebook Support Groups, ensuring that no one faces this journey alone.