Based in Volga, SD, the Prader-Willi Syndrome Association (PWSA) is dedicated to offering vital support to individuals affected by Prader-Willi syndrome, alongside their families and caregivers. Our compassionate Family Support team strives to provide accurate information at the critical moment of diagnosis, ensuring families have access to essential resources. We offer extensive services, including parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we assist families in navigating the complexities of Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. If you need assistance, please reach out through our local PWSA chapter via our online chapter locator or connect with us through our Facebook Support Groups for community engagement.