Located in Ferron, Utah, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, as well as their families and caregivers. Understanding the challenges families face upon diagnosis, the PWSA Family Support team offers an array of resources including accurate information, parent mentoring, nutritional education, and meal planning assistance. Additionally, our comprehensive services include behavior management support and assistance navigating the application and appeal processes for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access these vital services, families are encouraged to connect with their local PWSA chapter through the online chapter locator or by emailing for inclusion in one of our supportive Facebook groups.