Based in Helper, UT, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome, alongside their families and care providers. Our Family Support team offers reliable information and comprehensive assistance at the critical moment of diagnosis, ensuring families have the resources they need. We facilitate parent mentoring, nutritional education, meal planning, and behavior management support tailored to the unique needs of each family. Additionally, we guide families through the application and appeal processes for Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For assistance, families can reach out through our local PWSA chapter's online locator or connect with us via email to join our supportive Facebook groups.