Based in Hyde Park, UT, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing vital support and resources for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to offer accurate information and comprehensive assistance during the challenging times following a diagnosis. We provide a range of essential services, including parent mentoring, nutritional education and meal planning, and behavior management support. Additionally, we assist families with navigating the application and appeals process for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our Family Support services, visit our local PWSA chapter using the online chapter locator or reach out to us via email to join one of our supportive Facebook groups.