Based in Kamas, UT, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is committed to delivering timely and accurate information that families can rely on during the challenging moments following a diagnosis. We offer a comprehensive range of services, including parent mentoring, nutritional education, and tailored meal planning, as well as behavior management support. Additionally, we assist families with navigating the application and appeal processes for vital resources such as Medicaid, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families seeking assistance can easily connect with their local PWSA chapter through our online chapter locator or by reaching out via email for access to dedicated Facebook Support Groups.