Based in Providence, UT, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is a valuable resource, offering accurate information and compassionate guidance right from the moment of diagnosis. We offer a range of services, including parent mentoring, nutritional education and meal planning, and behavior management support. Additionally, we assist families with navigating application processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Our aim is to empower families with the knowledge and tools they need to advocate for their loved ones effectively. For support, families can connect with their local PWSA chapter or join one of our Facebook Support Groups for ongoing assistance and community connection.