At the Prader-Willi Syndrome Association (PWSA) in Roosevelt, Utah, we are dedicated to providing vital support for individuals living with Prader-Willi syndrome and their families. Our compassionate Family Support team offers accurate information and comprehensive assistance at the moment of diagnosis, ensuring families feel seen and heard. We facilitate essential services including parent mentoring, nutritional education, meal planning, and behavior management support. Additionally, we guide families through the complexities of accessing Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For personalized support and connection, families can reach out through our local PWSA chapter or join one of our Facebook Support Groups.