The Prader-Willi Syndrome Association (PWSA) in Burlington, VT, is dedicated to supporting individuals diagnosed with Prader-Willi syndrome and their families by providing vital resources and compassionate assistance at every stage of their journey. Our Family Support team is here to guide families through the complexities associated with this condition, offering accurate information and a variety of essential services including parent mentoring, nutritional education, meal planning, and behavior management. We also assist families in navigating the application and appeal processes for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can connect with their local PWSA chapter using our online locator or join one of our supportive Facebook groups for community engagement.