Located in Castleton, VT, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome and their families through extensive support and resources. Our Family Support team is a trusted ally, offering vital information and comprehensive assistance right from the moment of diagnosis. We facilitate parent mentoring, provide essential nutritional education and meal planning guidance, and offer behavior management support to help families navigate daily challenges. Additionally, we assist with the application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, reach out to your local PWSA chapter through our online chapter locator, or connect with us via email to join our supportive Facebook groups.