Located in Fair Haven, VT, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals diagnosed with Prader-Willi syndrome through vital support for their families and caregivers. Our compassionate Family Support team offers a wealth of resources designed to assist families from the moment of diagnosis, including detailed information, mentoring for parents, nutritional education, meal planning guidance, and behavior management strategies. We also provide invaluable help navigating applications and appeals for Medicaid, insurance, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families are encouraged to connect with their local PWSA chapter or join one of our Facebook Support Groups to build a supportive community.