Based in Highgate Center, VT, the Prader-Willi Syndrome Association (PWSA) is dedicated to empowering individuals with Prader-Willi syndrome and their families through vital support and resources. Our Family Support team is committed to providing accurate information and compassionate assistance at the time of diagnosis, ensuring families do not navigate this journey alone. We offer a comprehensive range of services including parent mentoring, nutritional education and meal planning, and behavior management support. Additionally, we assist families with the critical application and appeal processes for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For those seeking guidance, we encourage contacting your local PWSA chapter through our online locator or reaching out via email to connect with our supportive Facebook groups.