Located in Newbury, VT, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals with Prader-Willi syndrome, their families, and caregivers. At PWSA, our Family Support team is committed to offering accurate information and comprehensive assistance from the moment of diagnosis. We provide an array of services including parent mentoring, nutritional education and meal planning, behavior management support, and guidance with Medicaid applications and appeals, as well as support for insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To access our support resources, families are encouraged to connect with their local PWSA chapter through our online chapter locator or to join one of our supportive Facebook groups by reaching out via email.