Based in North Troy, VT, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support to individuals diagnosed with Prader-Willi syndrome, as well as their families and caregivers. At PWSA, we understand the challenges that come with a diagnosis, which is why our Family Support team is committed to offering accurate information, empathetic guidance, and comprehensive services tailored to our community's needs. Our resources include parent mentoring, nutritional education and meal planning, behavior management support, and assistance with navigating applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). Families can connect with our local chapters through the online locator or join one of our supportive Facebook groups to find community and resources tailored to their journey.