Located in Northfield, VT, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team is here to offer reliable information and compassionate assistance from the moment of diagnosis. We provide vital resources including parent mentoring, nutritional education, and meal planning, as well as behavior management support to navigate daily challenges. In addition, we guide families through the application and appeal processes for Medicaid, insurance benefits, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). We invite you to reach out via our local chapter locator or email us to connect with one of our supportive Facebook groups, ensuring that no family navigates this journey alone.