Located in Swanton, VT, the Prader-Willi Syndrome Association (PWSA) is dedicated to providing essential support for individuals diagnosed with Prader-Willi syndrome and their families. Our Family Support team offers reliable information and personalized assistance during critical times following a diagnosis. We focus on empowering families through vital services, including parent mentoring, nutritional education and meal planning, and behavior management support. In addition, we assist with navigating the complexities of Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI) applications and appeals. For those seeking support, our local PWSA chapter is available through our online chapter locator, and families are encouraged to connect with us via email to join one of our supportive Facebook groups.