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Just a small update

User Profile: Iamwhoiamwhoami
Iamwhoiamwhoami December 1st, 2022

I received a few different messages of support throughout many different posts, I guess they’re called “threads” . But anyway, I tried to at least give a basic response to each one yesterday, while I was at the hospital. I was trying this morning to go back and find those that reached out so I could respond properly and I am not accomplishing anything that way so I figured maybe this way if anyone I missed was really concerned I could tell the latest.

Results are pending, No root cause for my cognitive decline, etc. immediate attempt to alleviate symptoms is of course medication experimentation to try and help maintain.

So the normal wonderful fun of body adjusting to meds and figuring out how to deal with their true effects on my functionality.

I did find out something new about myself though . I have become extremely claustrophobic. I went into full blown panic mode just going into the machine. Had to calm down and they found another location with a bigger machine that I could get to as soon as I could drive there. I was able to struggle through that one . The older I get the more I’m falling apart mentally as well as physically.

I started the first dose of a new med to try and deal with 3 of my symptoms at once , extremely low dose . I did sleep a little longer , head hurts worse than usual, and mind is racing faster than ever. It’s very difficult to concentrate on my typing and words but I think I need to use this place to maybe help me keep track of this new part of my journey so that I can relate these things related to the meds to the doctor.


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User Profile: toughTiger6481
toughTiger6481 December 1st, 2022

@Iamwhoiamwhoami

i am glad you are making an effort to find out what it may be so many put things off ... i hope you adjust to the meds and find some relief

1 reply
User Profile: Iamwhoiamwhoami
Iamwhoiamwhoami OP December 1st, 2022

@toughTiger6481 Thank you for reaching out and sharing your kindness and concern.

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December 1st, 2022

@Iamwhoiamwhoami

Hi, glad you are back. I know those machines can feel very scary. I hope this new med and your test results can bring favorable treatment. Are the headaches just beginning? or is this caused by the new meds?

By all means when you feel like it keeps me posted. However, do take time for self-care, and don't push yourself too hard. I am glad that you also got a bit more sleep. It is in our Rem sleep that the body is able to heal its self.

3 replies
User Profile: Iamwhoiamwhoami
Iamwhoiamwhoami OP December 1st, 2022

@scarletPear1945 Thanks again for reaching out. I have been getting headaches/migraines for years. But to separate out the recent developments, I would say that normal “headaches” are mild yet annoying. But after the first night of the extremely low dose, headache was severe and graduated to a migraine, which I still have. No results yet, that I have heard. No improvements on any of the other issues I am struggling with.

I did start a different thread to try and keep my ramblings in one thread/area. I am hoping that that will be easier for me to handle with my cognitive issues. Basically, a diary for my ramblings.
2 replies
December 2nd, 2022

@Iamwhoiamwhoami

That is a wise decision. Hope you feel better soon, get some rest❤️

1 reply
User Profile: Iamwhoiamwhoami
Iamwhoiamwhoami OP December 4th, 2022

@scarletPear1945 Thank you.

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User Profile: calmMango9611
calmMango9611 December 2nd, 2022

@Iamwhoiamwhoami So sorry your struggling.

I am glad your taking the steps, to find out, the cause.

2 replies
User Profile: Iamwhoiamwhoami
Iamwhoiamwhoami OP December 2nd, 2022

@calmMango9611 Thank you so very much for reaching out and sharing your kindness and concern.

1 reply
User Profile: calmMango9611
calmMango9611 December 2nd, 2022

@Iamwhoiamwhoami You're very welcomed.


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User Profile: spongbobishappy
spongbobishappy December 2nd, 2022

@Iamwhoiamwhoami

I am inviting you to join me in the Sharing Circle chat room 😊 !

1 reply
User Profile: Iamwhoiamwhoami
Iamwhoiamwhoami OP December 2nd, 2022

@hounddog2021 That is very thoughtful, thank you. I have tried the group thing and it is not for me. Too much to focus on at once. My thought process interrupts my try to focus on other conversations. That and I type too slow for it to be effective for me . This here is my sharing circle, I share my rambling thoughts as they’re occurring and if anyone wants to respond all the better.

Thank you for reaching out to me and sharing your kindness and support.
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User Profile: spongbobishappy
spongbobishappy December 2nd, 2022

@Iamwhoiamwhoami

I use "Belly Breathing" to help me with panic attacks / anxiety attacks.

Here is a link for a Youtube.com video on "Belly Breathing" :

https://www.youtube.com/watch?v=RiMb2Bw4Ae8

1 reply
User Profile: Iamwhoiamwhoami
Iamwhoiamwhoami OP December 2nd, 2022

@hounddog2021 Thank you for the information. Highly appreciated.

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December 23rd, 2022

@Iamwhoiamwhoami

Would it be alright to post a picture of your trees on 7cups for all to see?

2 replies
User Profile: Iamwhoiamwhoami
Iamwhoiamwhoami OP December 23rd, 2022

@scarletPear1945

Of course, they are for everyone. I appreciate your asking. It is inspired by all, so feel free to post, share whatever makes you happy.

1 reply
December 24th, 2022

@Iamwhoiamwhoami

Thank you, I think the community should see the great length you went through to show your love and support. Your work was truly amazing. Thank you❤️for a job well done.

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User Profile: Iamwhoiamwhoami
Iamwhoiamwhoami OP December 26th, 2022

And the hits keep coming. What is happening to me. If it wasn’t happening to me I wouldn’t believe it . It’s like having symptoms of 25 different unrelated diseases at once. When I reread these things I wonder how it can possibly be true, then things start happening and I realize these writings are true. And I wonder why I am still alive. Am I some experiment in somebody’s cage, that is what it seems like.