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What upsets you about the lack of knowledge others have of your disability?

User Profile: AffyAvo
AffyAvo February 28th, 2019

Especially with rare diseases, there can be a fair bit of misinformation or someone may not have even heard about it.

What upsets you the most when it comes to people not knowing something about your disability?

2
User Profile: AffyAvo
AffyAvo OP March 1st, 2019

For me, it's doctors who are often in a position where they should be treating or identifying hereditary angioedema attacks (emergency room physicians, gastroenterologists, etc.) who are clueless about it and worse when it comes to the emergency room physicians they will often ignore clear medication instructions of how to treat them.

User Profile: JoyousBear
JoyousBear March 22nd, 2019

@AffyAvo Some people have hardship understanding that person with disability can be content with his or her disability as he/she accepted it and doesn't want that his/her disability will be cured as he/she is used to the lyfestyle he/she leads.