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Fibromyalgia is a Real Disability! Questions? Ask Here!

User Profile: JoyfulUnicorn
JoyfulUnicorn July 21st, 2020

What is Fibromyalgia?

Fibromyalgia, also called fibromyalgia syndrome (FMS), is a long-term condition that causes pain all over the body.

My Story - I am a Fibro Fighter

I am Joy. I am a listener here on 7cups and i am not without my own struggles, i have many health issues mental and physical and i live with Fibromyalgia. There are good days - there are pretty damn bad days where i am in agonising pain and can barely move and cope with the overwhelming symptoms. I have chosen this time to tell you of my health because I believe the awareness of this illness is important.

You Can Ask Anything!

If anyone has any questions please ask away - I can't speak for anyone else's experience but i can explain mine. Whether you are a sufferer yourself, or you have a family member or friend that you are unsure how to support or just want to know a lil more. Please ask - No question is wrong - No judgement here!

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Below are a few bullet points about Fibromyalgia…

- The most widely used criteria for diagnosis are: you either have severe pain in 3 to 6 different areas of your body, or you have milder pain in 7 or more different areas// your symptoms have stayed at a similar level for at least 3 months // no other reason for your symptoms has been found

- The extent of the pain used to be assessed by applying gentle pressure to certain "tender points", where any pain is likely to be at its worst.

- Fibromyalgia has numerous symptoms, meaning that no single treatment will work for all of them. Treatments that work for some people will not necessarily work for others.

- You may need to try a variety of treatments to find a combination that suits you. This will normally be a combination of medication and lifestyle changes.

- Fibromyalgia can also affect your mental and emotional health, and have a negative effect on your self-esteem.

Below is a summary image of a few of many symptoms people experience with Fibromyalgia…

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https://www.fmauk.org/ - Fibromyalgia Action UK is a charity that offers information and support to anyone who has fibromyalgia.

Remember.... Please ask anything you wish - No question is wrong - No judgement here!

Stay Strong and Keep Fighting!

-Joy <3

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User Profile: RyanFrancis
RyanFrancis July 23rd, 2020

@JoyfulUnicorn Thank You for this as this is very helpful.

User Profile: K87
K87 August 11th, 2020

@JoyfulUnicorn

Thank you. I have it, too. I was diagnosed in my early 20's, a few months after I got married. It's a living nightmare. I am lucky to have my husband by my side..

As far as it being a disability, it is, I get both SSI and SSDI.

1 reply
User Profile: JoyfulUnicorn
JoyfulUnicorn OP August 11th, 2020

@K87

We shall stay and fight together! Stay strong! Fibro can be super challangeing never give up! Sending spoons! I hope you find support in out community!

-Joy<3

1 reply
User Profile: K87
K87 January 29th, 2021

Hi, I just came across an old forum post about fibromyalgia. I was wondering how u have been, especially with the pandemic and everything.smiley

@JoyfulUnicorn

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User Profile: TheOriginalRex
TheOriginalRex March 25th, 2021

Hi, yea I know this is an old thread, but I havent seen any fibro support groups in the community. Thank you so much for sharing!

1 reply
User Profile: JoyfulUnicorn
JoyfulUnicorn OP March 27th, 2021

@TheOriginalRex

Always! Glad you found this post and awareness 🦄

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User Profile: adventurousBranch3786
adventurousBranch3786 December 2nd, 2022

@justHurting02 I found the post about fibromyalgia🌻.

2 replies
User Profile: moonlightMittens7125
moonlightMittens7125 December 15th, 2022

thank you @adventurousBranch3786 sorry for delay in responding

1 reply
User Profile: adventurousBranch3786
adventurousBranch3786 December 15th, 2022

@justHurting02 No problem ❤️.

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