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My Name is Fibromyalgia

User Profile: PinkDahlia22
PinkDahlia22 September 4th, 2020

I saw this post on social media and felt that it really says it all about this condition and wanted to share it here on cups. I Did not create nor write this post i am solely sharing it <3

Hi....My Name is Fibromyalgia, and I'm an Invisible Chronic Illness.

I am now velcroed to you for life.

Others around you can't see me or hear me, but YOUR body feels me.

I can attack you anywhere and anyhow I please.

I can cause severe pain or, if I'm in a good mood, I can just cause you to ache all over.

Remember when you and Energy ran around together and had fun?

I took Energy from you, and gave you Exhaustion.

Try to have fun now!

I also took Good Sleep from you and, in its place, gave you Brain Fog.

I can make you tremble internally or make you feel cold or hot when everyone else feels normal.

Oh, yeah, I can make you feel anxious or depressed, too.

If you have something planned, or are looking forward to a great day, I can take that away, too.

You didn't ask for me. I chose you for various reasons: That virus you had that you never recovered from, or that car accident, or maybe it was the years of abuse and trauma.

Well, anyway, I'm here to stay!

I hear you're going to see a doctor who can get rid of me.

I'm rolling on the floor, laughing.

Just try.

You will have to go to many, many doctorsuntil you find one who can help you effectively.

You will be put on pain pills, sleeping pills, energy pills, told you are suffering from anxiety or depression, given a TENs unit, get massaged, told if you just sleep and exercise properly I will go away, told to think positively, poked, prodded, and MOST OF ALL, not taken as seriously as you feel when you cry to the doctor how debilitating life is every day.

Your family, friends will all listen to you until they just get tired of hearing about how I make you feel, and that I'm a debilitating disease.

Some of they will say things like "Oh, you are just having a bad day" or "Well, remember, you can't do the things you use to do 20 YEARS ago",not hearing that you said 20 DAYS ago.

Some will just start talking behind your back, while you slowly feel that you are losing your dignity trying to make them understand, especially when you are in the middle of a conversation with a "Normal" person, and can't remember what you were going to say next! In closing, (I was hoping that I kept this part a secret), but I guess you already found out...the ONLY place you will get any support and understanding in dealing with me is with Other People With Fibromyalgia. 📷

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User Profile: JoyousBear
JoyousBear September 8th, 2020

@JoyIntoDarkness Thanks you very much for this great and very educating post.

User Profile: adventurousBranch3786
adventurousBranch3786 September 8th, 2020

@JoyIntoDarkness Awesome!

User Profile: adventurousBranch3786
adventurousBranch3786 September 9th, 2020

@JoyIntoDarkness I meant awesome post!

User Profile: gettingbetter27
gettingbetter27 September 11th, 2020

I never got a diagnosis. After tests, the hospital discharged me and that was it. I can relate to a lot of this post. I looked on the NHS website and read through the fibromyalgia symptoms. I have many of them. I thought I have fibro but wasn't sure without diagnosis.

Thanks for sharing!

User Profile: plumCup3338
plumCup3338 December 1st, 2023

Yep seen this before and it's true. Fibro just sux. I have had it flare up 10 years ago but its been in the background for a while. Think birth surgical trauma was the trigger. You have to live with it and pace. I didn't at first and tried to push through and made it worse. Cried so much but you need to Accept it is here and don't fight your body. Practice self care and advocate for yourself. Gentle hugs for any fellow fibromyalgia ppl