Monday, November 28 Disability Support Check-In Thread

Thanks for allowing me this opportunity, I appreciate it! Oh, Monday's, hmm.. Since I am still school age I go to school, and afterward go to one of the Clubs at my school. So, fun fact, I'm in French Club this year For anyone else school age and seeing this, do you participate in any clubs? Overall today's Monday wasn't bad!

It has been and is going to be a pretty uneventful day. That doesn't stop me from being exhausted!

My partner helped me research devices for tracking pulse, steps, sleep, body temp, etc., and he found one that sounds great for the price! I'm hoping to try it out soon. Because of my POTS, narcolepsy, and possible sleep apnea (it's complicated), being able to find patterns in pulse and sleep sounds really helpful. I'm also trying to work on having a more consistent amount of steps/exercise throughout the day. Spending most days not moving much and having the occasional day where I move 5 or 10 times more is probably contributing to my crashes. If I could accurate track my activity, I can find patterns in what makes me feel better/worse. For now, I downloaded an app that's supposed to use your mic to track your sleep, and it seems to think that I've been going from being awake to being in deep sleep constantly throughout the night. If it's accurate, maybe that's one reason I'm so tired today.

I also started my cycle, which is making IC and probably dehydration worse. Luckily, I should be able to get fluids again soon. I'm currently getting one liter a week until I can find a doctor to set my PICC line up. It might be helping a tiny bit. It's really hard to tell.

I'm also supposed to do more physical therapy today. I adjusted my schedule so I only did my exercises 3 times a week because my muscles have been taking much more time to recover. At this point, after doing a really easy exercise, my muscles can feel extra sore for over a week. It's hard to tell if I should be exercising during that time because they say often say to rest and let your muscles rebuild themselves when you're sore. I should probably bring this up to my physical therapist. I think I'll try to do the exercises today.

What do I do on a typical Monday? Nothing out of the ordinary. Usually, I either have a doctor appointment or am staying at home recovering from something I've done on Sunday.

Sorry this got so long!!! Hope you all are doing okay.

I'm not totally sure what a typical day is anymore, things can be all over the place. I was up early and cleaned a bit this morning. I've napped away most of the afternoon. Took care of a few bills, online purchases, basic household kind of things that take little energy. I might pick up some baking supplies later if I feel up to going out.

A normal Monday for me it's catching up on TV or a book I'm reading, also doing stuff on 7 cups. Which by the way I will be going in the disability support room every day at some point. No particular time yet. :-)