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Weekly Check In April 10 - 16

User Profile: AffyAvo
AffyAvo April 11th, 2023

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[Structure cabling system with numerous network cables]

Do you feel connected to other people in general?

Do you feel connected to the disability here and out in the world?

What would help grow or strengthen your connections?

How are you doing this week?


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Check out this thread to stay updated!


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User Profile: AffyAvo
AffyAvo OP April 11th, 2023

To add yourself to our automatic taglist, see the instructions in the thread over here


@777Bre777 @adaptableOcean4193 @adaptablePomegranate1587 @adequatelyInadequate @adventurousBranch3786 @AffyAvo @agreeableTurtle1021 @amusingTalker1267 @Aqua1494 @Arsalanahmed @Ashleylovescats @AttentiveEar @audienta @Averayne93 @azuladragon34 @BacktotheTrail @BeyondTheInvisible @BlindGrapefruit @blissfulTouch29 @bouncyVoice4149 @Breezy2013 @CaringBrit @CheeryPotato @CheerySandi @ChildGoddessFlute @Colorfulcatsofhope @considerateBunny7436 @crystallizedrequiem @Daisy7cups @DichotomousDetia @disneymoonlight @Disneywoman @DoISayIt @DonaldK @DylanMark @Edobre399 @Emiliako @emotionalTalker2260 @enthusiasticTortoise6681 @fairmindedWater1140 @Fireskye13 @FrenchMarbles @friendlyEars8792 @goldenSpruce1512 @IcedCoffee211109 @InfiniteThoughts2k19 @Jamesjones10123 @Jewels012222 @jovialButterfly6752 @JoyfulUnicorn @JoyIntoDarkness @K87 @kenzixo @killaj0ule @kwheelz @lightTriangle7748 @LikeABirdWithoutWings @lovelycoacoa @lovelySun2900 @LoveMyRotty @magnifiedfaith @ManinblacK @MeaningfulSilence @Meowsicle @MistyMagic @mnhtx3 @modestHickory2783 @modestOcean1286 @moosprbrk @MyNameIsNicole @NaomiR @NevaehRose @NotKhan2 @NovaIsNB @OneErased @philosophicalAcai7803 @pinkbunnywabbit @Pixiechu @placidMoth @PotFullOfSky2020 @rainbowVibes @Raysofsunshineandrainbow2005 @redGrapes1822 @Redheadmadeofglitter94 @repen13 @reservedCat9143 @sabeyesofblue3535 @SmolBurrahobbit12 @SparklyCat @specialPurple1582 @StarsOrchidsOwls @stuffiessytem @sunshinegiraffe123 @theboymoana @TimidBear @TomatoEmi @turquoiseHemlock900 @u2canwin @wahmbrenda @WeedyGarden @wonderfulRainbow817 @xandia @Xisle @Zed786

2 replies
User Profile: adaptableOcean4193
adaptableOcean4193 April 12th, 2023

@AffyAvo

I am looking forward to joining you. Now if I just remember tomorrow at 11:00!

2 replies
User Profile: AffyAvo
AffyAvo OP April 12th, 2023

@adaptableOcean4193 I hoped you enjoyed it! We have another planned for next week too, and will keep people updated with the schedule thread that's linked.

2 replies
User Profile: adaptableOcean4193
adaptableOcean4193 April 13th, 2023

@AffyAvo

I just happened to be in the right place at the right time to attend. It was very helpful. I hope to continue. My memory is not so great. Please don't say set reminders.... there are way too many things I must remember. from experience, notifications make me batty. The sheer number of dings would make my head spin, I do check my calendar every morning and have them written down. the act of writing it, plus having already read it, and now attended one should help me remember better. I truly enjoyed the group today.

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User Profile: DonaldK
DonaldK April 11th, 2023

@AffyAvo Life in general it's always difficult with a disability. But it's what we make of it that matters. I like to be here I know things have been a little bumpy and I'm sorry for my part. However please know that I love you all.

1 reply
User Profile: wonderfulRainbow817
wonderfulRainbow817 April 12th, 2023

@DonaldK, I love that - "But it's what we make of it that matters." It truly is what we make of it. I find I can either define my disabilities or let my disabilities define me

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User Profile: wonderfulRainbow817
wonderfulRainbow817 April 13th, 2023

@AffyAvo,

Do you feel connected to other people in general?

I don't feel connected to every day people around me because most of them don't face the hardships I face. That's not to say they don't face hardships because we all do but mine are more intense it feels like sometimes.

Do you feel connected to the disability here and out in the world?

Yes, I have more empathy for those who have disabilities since I can understand some of the emotions and hardships that come with it.

What would help grow or strengthen your connections?

Just being able to share what I go through on a daily basis

How are you doing this week?

I am doing pretty good so far this week. The weather has been nice so I have been getting out while I can
1 reply
User Profile: AffyAvo
AffyAvo OP April 17th, 2023

@wonderfulRainbow817 I can relate to that, feeling connected just by sharing the hardships. I'm glad you're having good weather! I'm hoping the t-shirt days show up here soon!

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User Profile: adaptableOcean4193
adaptableOcean4193 April 13th, 2023

@AffyAvo

I don't feel very connected to others at the moment, mostly as I have not been able to get out other than to medical appointments. While I am introverted, I have a large group of friends I spent time with on a weekly basis. COVID came, then just as things were beginning to move and shake again, my grand event came along and knocked the wind out of me, and I fell on my tail. My life changed drastically...no more job (which I loved doing). No more going out dancing, kayaking, camping, etc with friends. No more hiking with the dog, or playing soccer with my grandson. Friends are back out doing those things without me. I am happy for them, but i miss them.

I am also not very connected with my disability as I so far refuse to believe this is the best I can do.

I maybe didn't realize quite how stubborn I can be until this incident. If I had transportation to the dancing, camping, kayaking, I would find a way to do it, risks be damned. There is a car in the driveway, I have keys to, and I still have a license, but although I would bet against the risk for myself, I cannot put someone else in danger. So for me some things that would be helpful is knowing of some resources to help with rides, food, housekeeping ...how to communicate my needs effectively to my helpers, how to stay understanding and respectful of my caregivers needs and concerns.

2 replies
User Profile: AffyAvo
AffyAvo OP April 17th, 2023

@adaptableOcean4193 Those sudden changes in capabilities can be really tough adjustments!

I understand what you mean about risks. I hope you can find a way to join in again soon with some reasonable risks 😊

1 reply
User Profile: adaptableOcean4193
adaptableOcean4193 April 17th, 2023

@AffyAvo

I am glad for me that you understand, but sorry you do, because it probably means you have been there or are there yourself. I pray that is behind you now and you are well on your way to any recovery you might be needing or have needed, Big hugs to you!

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User Profile: optimisticHuman5133
optimisticHuman5133 April 16th, 2023

I just hope any person with a disability get what they need and pay for. The Lord will always be with them there always someone willing to help.

1 reply
User Profile: wonderfulRainbow817
wonderfulRainbow817 April 17th, 2023

@optimisticHuman5133, ❤️

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