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Weekly Check-In May 15 - 21

User Profile: AffyAvo
AffyAvo May 16th, 2017

I feel like May is flying by, we're half way through the month already!

How are things going for you?

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User Profile: AffyAvo
AffyAvo OP May 16th, 2017

I had a really rough evening, I think due to weather changes. I wish I could have just slept through it, but I woke up feeling too sick to sleep, just as pain can interrupt sleep. I really wish we had more words to describe various ways of feeling sick. There are so many descriptive words for pain and I find it isolating in some ways that some other symptoms don't have such words. Malaise includes too much and it makes it difficult to find people who relate without the words. The lack of language also makes it feel like others don't experience these frequently enough.

Bit of a ramble about that. Good news is the storm is over, I got through it and I'm starting to feel better. Was really glad to have my husband by my side, it makes it easier to deal with the tough times.

1 reply
User Profile: Moosewithducks
Moosewithducks May 20th, 2017

@AffyAvo

I'm sorry to hear that you were experiencing such a rough evening. I agree that it can get really tough at times and often the words are just missing to describe it. I'm glad that it is over now and you are starting to feel better, and that having someone by your side can make things easier.

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User Profile: LeoTheLlitteLionCub1
LeoTheLlitteLionCub1 May 16th, 2017

hi everyone i hope you all are doing grate and well i have something that i would to share for you all and i hope you all injoy reading this post that i have ritten for all of you all with hugs from one member to the nexst 🙂

here is whut my summer holladys means to me and my family for me i cant wite until summer cus i will love the worrmer weather and thats when summer holladys starts for me and my family summer is whut i like the most it brings happy momints for me and my family and its good to take a brake and to just relax and injoy whut life has to bring live life to the fulist and be strong and gratful🙂

User Profile: Mellietronx
Mellietronx May 18th, 2017

@AffyAvo I started a workout program at home and have been feeling fantastic :)

2 replies
User Profile: Moosewithducks
Moosewithducks May 20th, 2017

@Mellietronx

That's great news! I'm glad to hear that you are feeling fantastic

User Profile: KingdomWorker
KingdomWorker May 21st, 2017

@Mellietronx So happy to see you have found something that brings you happines! Hope it is all going well.

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User Profile: Pikashuppet
Pikashuppet May 18th, 2017

My mom is still reluctant in returning most of my Wii/Gamecube games I've played since I was little; and for the longest time they have helped me get through tough times (bullying in school, depression). Hell, I've played them to keep me occupied when I had nothing else to do, but my time with them was even more restrained cos of my mom's "take a break" policy and privacy invasion thru a camera in my room. Once I left her, she never returned them cos she refuses to acknowledge they were gifts for me from birthdays and Christmas; other times as rewards.

Also tells me she is a "flawless" parent, which technically is a huge kick in the face, and keeping gifts away from her child who uses them to relieve stress is also a punch in the stomach. A parent calling themselves "flawless" hurts their disabled kids...A lot. Don't they realize they have feelings? Besides, I can't afford second copies of my treasured games; why can't she return MY games and buy HERSELF second copies?? They're not as expensive now as they were when they were released years ago. >_> Let them sit for ages and not the ones that I kept alive for so long for the sake of keeping myself occupied and stress-free?

Video games HAVE been useful for people with disabilties to relieve themselves, educational or not. My mom in my part is basically WANTING me to keep my stress levels alive if it isn't me drawing/taking photos. BTW, I don't spend 5-10 hrs playing vidgames a day; just 3 hr at max. I still have my handheld games, but I'm mostly playing console games since I like to keep my eyes farther from the screen too.

2 replies
User Profile: Moosewithducks
Moosewithducks May 20th, 2017

@Pikashuppet

I'm sorry to hear that you mom won't return your video games. Especially since they are a way to relieve stress for you. Do you feel like the handheld devices are still helping you cope?

1 reply
User Profile: Pikashuppet
Pikashuppet May 20th, 2017

@Moosewithducks They do, but I like keeping my eyes slightly farther from the screen to avoid straining.

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User Profile: Mellietronx
Mellietronx May 20th, 2017

@AffyAvo Up and down. I had a few rough days, but I am holding on.