VCFS - 22q11 deletion
LaynieJWest5661
August 12th, 2015
In my late 30's now. But diagnosed with VCFS when I was 24(ish) or so took many years and still struggling with finding Dr.'s that know what to do and especially locally.
Anomalia
July 19th, 2016
I'm sorry it's been such a struggle to find doctors who understand what you're going through - I can't imagine how frustrating that must be, and I think it shows a lot of personal strength to keep seeking!
