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Being Alive Vs. Living with a Chronic Illness

User Profile: AffyAvo
AffyAvo June 1st, 2015

https://www.huffingtonpost.com/ilana-jacqueline/personal-health-_b_5482294.html

I identify with this article so much. For a while, I struggled with this, I had basically become my diagnosis for a while.

I still have the bad days, but most days I am living with my chronic illnesses!

What helps you to get out there and be living with your chronic pain or illness?

6
May 26th, 2016

@AffyAvo I'm sorry you didn't get a response to this thread! I read the article linked and I thought it was really informative and so true! I also live with chronic pain and for me, I manage it by always setting a goal each and everyday. Sometimes my goal on a particular day may seem small and insignificant, like getting out of bed and trying to smile. Other days I come to 7cups and devote my time and efforts to helping others. Other days I will force myself to get out and breathe in some fresh air.

I definitely agree with the article, you must always move! Even if it's just a little activity, you should always set a goal in mind each and everyday. As Mark Dayton said, "Idle time is the devil's play."

5 replies
June 16th, 2016

@KindListening. Actually what helps me is my partner. She somehow keeps me thinking forward. Also coloring is A great way to excape pain and be creative. However as with everything else what works for one person may not work for another

2 replies
June 16th, 2016

@ComicCarol

Absolutely, there is not only way of how to live with chronic illness! It's awesome to acknowledge what works for you and what is helpful for you. I'm glad Affy posed the question so that everybody can give their own insights and perspectives. It's very interesting!

As for me, those are the things that help me live with chronic illness.smiley

User Profile: AffyAvo
AffyAvo OP June 16th, 2016

@ComicCarol I'm glad you've found things that help you!

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User Profile: AffyAvo
AffyAvo OP June 16th, 2016

@KindListening Thanks! I didn't mind the lack of response, I just figured since this resonated with me, there were likely others out their with a chronic illness where this could help them out.

Like the article mentions, it's normal to stagnate and be stuck for a while. Especially with more serious symptoms, a new diagnosis, etc. It's ok to be focused on just getting through that tough time while not really meeting the 'living' points here. It's useful to have this list though I think for when it's time to come out of that just getting through each moment. To find a new, living normal.

1 reply
June 16th, 2016

@AffyAvo Finding the "new " normal is the hardest thing

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