Struggling
My illness is clouding my judgment. I woke up with an attack and while I thought some of it likely was, I didn't realize the extent of this.
I'm still not comfortable self-treating although I can at least usually do it alone if necessary.
Why is this so hard?
@AffyAvo
That's not cool!! Argh, what a spoil from beauty sleep.
@CarpetLovesU Thanks!
I'm doing better with all the self-treatment stuff but it can still be hard to recognize an attack to treat it ASAP when I'm out of it so I can treat it promptly. It's scary how often they hit in my sleep, I know of others who have died because of it :(
@AffyAvo
Now, is it like a nocturnal seizure?
@CarpetLovesU No, it's swelling. Attacks can hit anywhere but for me it's often my throat. It's due to hereditary angioedema.
@AffyAvo
And, what the hell do docs suggest you do? Better not be that: "eat healthy" kind of cliche advice.
My friend's seizures are worsened by her snoring.
What helps you get thru the night?
@CarpetLovesU I have medication and I try to avoid triggers. Not all attacks happen at night, it's just tough when they doing as injecting medication ASAP is the best option.
At least they do allow people to have the medication at home and do the IVs themselves. My doctor actually really pusehd for that years ago, before people had to go to the emergency room to get the medication so the risk was even higher.
@AffyAvo
You know what? That's a nice kind of independence. Self administration gives a sense of autonomy.