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Endometriosis suspected disease

August 23rd, 2016

I'm suspected to have endometriosis. I'm on medical birth control. Which I have been on for about almost a year now. And next month, I finally have an appointment with my potential surgeon.

I have been living in chronic pain for years, when it comes to my period. Since the start of puberty, at the age of 10. But, the last 2-3 years, they have just been unbearable. To the point where I collapse to the ground, and can not move. To the point, where I look three to four months pregnant, because of how bloated I am. That I dry heave almost every morning. And can spend my mornings, before work, throwing up 5 times, in concessions. I can barely eat, and I wake up in some nights, screaming in pain. Barely anything relives the pain. Can I'm no longer on pain meds. The meds I'm supposed to be on, our 100$ per bottle. Something I just cannot afford.

I have two worries about this upcoming surgery.

1. That maybe it's not endometriosis or, that I end of getting misdiagnosed. Which seems to be quite common for those who do have it.

2. That I will never get any sort of quality of life back. This has ruined everything. My dating life, my independence. My happiness. I am dependent on my father. And I honestly just want to just die already. My father would have retired by now, if it weren't for me.

I have no ideal what I am supposed to do. I am so tried of living in chronic pain. I'm only 22, and feel like my life is over.

I want out of this. But I have barely any support at all.

4
User Profile: ladylazarus1971
ladylazarus1971 August 23rd, 2016

@InebaEcho I wish I had something more witty or helpful to say, rather than this short post, but I don't, unfortunately. I have dealt with a lot of reproductive issues in my life, but the horror of possible endometriosis hasn't been one of them

Although I can not pretend to know what you are going through, I can tell you that you are not alone. All of us here on 7 Cups are prepared to share your journey with you-- to hold your hand when you need a friend, to provide personal experiences with reproductive health, or provide an ear when you need to vent a little, or be heard crying out in your pain. The group chats, forums, and 1-1s with a Listener can do all of those things.

I hope for you some peace from this physical and emotional pain, as well as the relief of a proper diagnosis and appropriate health care. Good luck, honey! <3

User Profile: inventiveTangerine7914
inventiveTangerine7914 June 24th, 2025

Hey! Just wanted to share some hope for you, from someone diagnosed with stage 3 endometriosis who once felt so helpless and hopeless to the point of being borderline suicidal. 

I started having symptoms at around 19. It took me 7 years to get diagnosed. In that time I was passed around between doctors, subjected to so many miserable tests, advised of being drug seeking, mental, overdramatic. 

I had a previous surgery from a doctor who was "experienced with endometriosis". She didn't find any. She said "you're good! Just take up vigorous exercise, that'll solve all your problems!" When I went to the doctor who diagnosed me, he said it's unfortunately all too common that he diagnoses in people who have been told they don't have it.

My best advice is just keep pushing and don't give up! I found my doctor through a recommendation from someone he had diagnosed. I have seen posts on *** where the comments are filled with the name and location of people's surgeons- what a great resource. Mine is 4 hours away from me and absolutely worth the drive! 

I honestly can't even describe the relief I felt after being diagnosed. Mentally knowing that I'm not crazy and having a name to it. But also the physical relief. My post surgery pain was so much less than my normal daily pain. I made my husband stop at Panera bread to go in and eat halfway home (2 hours after surgery). And the relief lasted about 5 years for me. Which doesn't sound like much but when you've been dealing with daily pain it feels like a lifetime. 

I'm having a hysterectomy soon so hopefully that provides more lasting relief. 

Also birth control never helped me at all but I was on synarel (nasal version of lupron) for quite a long time. It has many side effects and is definitely not for everyone but it helped me immensely. 

1 reply
User Profile: AffyAvo
AffyAvo June 25th, 2025

@inventiveTangerine7914 Thanks for sharing what has been working for you! I hope the surgery goes well and gives the relief you are looking for!

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