New here

As the title states, I am new to this app, it was recommended to me by a friend. Around 2.5 years ago, I started getting very sick, not long after, they diagnosed me with a brain condition. Well, it turns out that's it a rather rare condition, and there seems to be no doctor in my country, with proper knowledge of it (and comorbits) Right now I have a neurologist giving me medication against tension headaches - as he's sure it's just migraines and tension headaches ... Which means I get nothing to actually help my pain, and it's getting too much, I don't know how much longer, I'll be able to handle it. My only current pain relief is cannabis