Update
Hey guys so I went to the neuro yesterday who diagnosed me once again with Post Concussion syndrome 2nd time since 2017 . Migraines and tension headaches, started me on new medication for that . Arthritis in my neck. Yeah arthritis in my neck is the least of my worries right now since my c4 is slipping over c5 lol.. Anyway he wanted me to get back into the eye surgeon which I did that today and well lets just say dude is charging insurance to tell people tke your glasses off when you walk?? What the heck ?? I do that and I am gonna fall down the steps .. the floor hasn't been dropping out from underneath me until recently..ive worn bifocals since high school lol anyway.. how you gonna tell your patient to go back to your neuro and tell him" you came to see me i said your eyes are fine its your brain thats not " come back and see me in 6 months lol.. now normally I would be like ok . But no my eyes are not ok lol .. I trip , I cant see things that are right in front of me, I have double vision , lines on paper jump off the paper and the floor is now dropping out from under me .. sure some of that is likely the PCS .. but ive always been able to see where im going ..and lines dont typically fly off the paper lol.. if it helps I also have Exophoria.. Anyway imma get through this too but if this goes sideways soneone else's floor is gonna drop out from underneath them in court
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It is incredibly exhausting and deeply frustrating to have severe, terrifying symptoms like double vision and feeling like the floor is dropping out from under you, only to be passed around by specialists who dismiss what you are going through. Medical gaslighting is entirely real, and it makes complete sense that you are angry and ready to hold people accountable—your body is telling you something is wrong, and you deserve real answers, not a casual brush-off. When your spine, your vision, and your balance are all misaligned, it takes a massive toll on your spirit just trying to advocate for yourself. I am not an expert, but if you ever just need a safe space to vent, complain about the healthcare system, or just need someone to listen without any judgment, please know that I am here for you. Hold onto your fierce resilience and don't let them make you doubt your own reality; you know your body better than any doctor who tells you to just take your glasses off.
@hikari thank you so much..
Its so frustrating with the PCS .. im trying to not get anymore concussions and if my eyes are causing me to fall then they need fixed. Im also a bit cranky todah cause its bee 5 years since my elderly friend passed away from injuries his son in law inflicted on him because " he was mad" so Im just having a rough day with not feeling great and the eye surgeon and that .
