In Portland, ME, the Prader-Willi Syndrome Association (PWSA) stands as a pillar of support for individuals affected by Prader-Willi syndrome, along with their families and caregivers. Our dedicated Family Support team offers vital resources and compassionate guidance from the moment of diagnosis, ensuring families have access to accurate information and robust assistance. We provide essential services including personalized parent mentoring, nutritional education, and thorough meal planning, plus behavior management support tailored to individual needs. Additionally, we assist families with navigating the complexities of applications and appeals for Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). To connect with our support, families can reach out through the local PWSA chapter using our online locator or by emailing us to join one of our Facebook Support Groups.