Located in Waitsfield, VT, the Prader-Willi Syndrome Association (PWSA) is dedicated to uplifting individuals and families affected by Prader-Willi syndrome. Our compassionate Family Support team is here to provide accurate information and comprehensive assistance right from the moment of diagnosis. We offer a range of services including parent mentoring, nutritional education, meal planning, and behavior management support, ensuring families have the guidance they need. Additionally, we assist with the complexities of applying for and appealing Medicaid, insurance coverage, Supplemental Security Income (SSI), and Social Security Disability Insurance (SSDI). For support, families can connect with their local PWSA chapter through our online chapter locator or by joining one of our Facebook Support Groups.