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Weekly Check In Aug 21-27

User Profile: AffyAvo
AffyAvo August 21st, 2023

image_1692585014.png

[A orange water bottle is sitting on a sports field, with a goal net behind it]

Does your disability affect your ability to properly hydrate in any way?

Do you have any tips for someone dealing with similar difficulties?

How are you doing this week?

Also I want to say thank you to everyone for their understand with the disruption to normal forum activities while I was on an extended break. I hope to be back here as usual for quite a while!


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User Profile: AffyAvo
AffyAvo OP August 21st, 2023

Check out this thread to add or remove yourself from our taglist.

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User Profile: blissfulTouch29
blissfulTouch29 August 21st, 2023

Does your disability affect your ability to properly hydrate in any way? No, my disability doesn't affect my ability to properly hydrate in any way.

Do you have any tips for someone dealing with similar difficulties? Don't let people tell you what you cant do you might have to do it differently so what.

How are you doing this week? im so so

2 replies
User Profile: AffyAvo
AffyAvo OP August 22nd, 2023

@blissfulTouch29 Thanks for coming by the check in and I like that, yes sometimes we do things differently and it's alright!

1 reply
User Profile: blissfulTouch29
blissfulTouch29 August 27th, 2023

@AffyAvo thanks

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User Profile: Plantsaremybestfriends
Plantsaremybestfriends August 21st, 2023

Does your disability affect your ability to properly hydrate in any way?

No, it doesn't. I do struggle with being hydrated because I'm forgetful however.

Do you have any tips for someone dealing with similar difficulties?
I don't think I can help much if it's due to your disability but if your forgetful like me I highly recommend always having a water bottle nearby that you can see, as well as setting reminders on your phone/smartwath/whatever you use for reminders. That has helped me get better at remembering. Good luck!

How are you doing this week?
I'm not great. I had a couple flare ups so far and I'm sick (just a cold, but its annoying)
2 replies
User Profile: blissfulTouch29
blissfulTouch29 August 21st, 2023

@Plantsaremybestfriends

Thank you I also make sure I have a water bottle near my bedside too. I am here for you

User Profile: AffyAvo
AffyAvo OP August 25th, 2023

@Plantsaremybestfriends Having reminders by keeping a waterbottle nearby plus timer type reminders can be helpful!

Flares and acute illnesses can be rough hope you start feeling less sick soon.

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User Profile: slowdecline48
slowdecline48 August 25th, 2023

My disability doesn't do that, fortunately. However I've been careful to drink enough water most days ever since I lived in southern NV for a few years. It's a desert environment; during summer the heat there is as brutal as in most places in the world. My hot weather tips, from my experience as a "desert rat":

  • If when you pee it comes out yellow, you are in the first phase of dehydration. Get some water immediately.
  • If you have a headache (& normally do not have head pain) then you're probably dehydrated. Drink some H2O pronto.
  • When it's hot, don't go outside without covering your head. A hat, a bandana, anything will do as long as it's white or light-colored. If it covers the back of your neck too, that's even better. This goes double if you're bald. It also applies when in winter or cold autumn: some 30% of your body heat is emitted from your neck & head.
  • Wear a long-sleeved button-down shirt or denim jacket open, over your t-shirt. This keeps the sun off your shoulders & arms. Also, a long-sleeved shirt slows the evaporation of your sweat & will catch a breeze if there's air movement. Think of Bedouin Arabs: do you see them running around in t-shirts (or shirtless), shorts & flip-flops? No, you do not. They dress as they do for good reason.
  • When you're driving, park your car in a shady spot every chance you get. A car sitting in direct sunlight can produce temperatures of 🔼 43 deg. Celsius / 110 deg. Fairenheit inside itself.
  • Keep at least one gallon of potable water in your vehicle. When in doubt, keep two. Your car may break down somewhere inconvenient. If it does, what if your phone is dead or there's no coverage where you are? You may have to wait for help. Plastic jugs are thin & easily damaged; glass jugs are fairly sturdy unless they're dropped on a hard surface from four feet or so. But glass ones can be washed & reused. You pays your money & you takes your choice. Keep 'em on the floor behind the driver or passenger seats...you don't want them falling off the seat whenever you brake.
  • Carry firestarting materials in your car, also. Why do this in a hot area? Read on: If you're driving & your car breaks down in an arid environment, try calling for help. If your phone isn't working or there's no coverage where you are, do not panic. (Panicking is the worst option to pick, always) In the US & probably in most other Western countries, fire is your friend. Gather combustible materials from nearby (do not wander too far from your vehicle!), gather them in a small pile at least 20 feet from your car & light it up. If it's daytime, the smoke will attract a fire marshal or other local authority; if it's night the fire itself will do the same. This move may or may not be legal but in a life-or-death situation, you can't worry about that. Once you explain what's going on, the fire marshal will probably understand & help you out.
  • Avoid alcohol during daylight hours. Alcohol takes water from your body more quickly.
  • Ditto for caffeine, if you can help it. Caffeine does the same thing in the same way...that's why people who drink lots of coffee tend to go to the bathroom a lot.
  • If possible, avoid outside activities during the middle of the day...usually from 10 a.m. to around 3:30 p.m. During those hours the sun is highest in the sky & sunlight is at maximum potency.
  • Don't mess with rattlesnakes, scorpions or other local wildlife. (Do I even need to say that?)
1 reply
User Profile: AffyAvo
AffyAvo OP August 27th, 2023

@slowdecline48 Thanks for sharing the hot weather safety tips!

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User Profile: theboymoana
theboymoana August 26th, 2023

@AffyAvo

yes especially brain swelling happen and have surgery in may now can’t swallow so have feeding tube and have drink by put water in tube and need help can’t do own

not know but have bad days lately ☹️

1 reply
User Profile: AffyAvo
AffyAvo OP August 27th, 2023

@theboymoana Oh, not being able to swallow is certainly an issue. I hope you have good days ahead!

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