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Weekly Check-In March 4th-10th

User Profile: CaringBrit
CaringBrit March 4th, 2019

Hey Disability Community,

I'm going to do a short regular check In this week and continue the ACT series on my next one

heartHow are you all feeling this week, tell us the good/bad/all in between

heartWhat is your favourite Self-care method to turn to when you need to recharge

heartwhy is this your favourite Self-care method

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User Profile: CaringBrit
CaringBrit OP March 4th, 2019

Taglist

: @AffyAvo @aluminum1azalea @amarifey @BeyondTheInvisible @CaringBrit @DanaMH @Krispykitty12 @NoraMeow @Tyedyedbutterfly65 @VinylFly @JoyIntoDarkness @Eee333 @k87 @goldenSpruce1512

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User Profile: Name1534
Name1534 March 4th, 2019

Ive had a bad weekend last week but hopefully ill have a better week/weekend this time around. Im 24 and have erectile dysfunction that I have been managing fairly well with diet and lifestyle changes. I had some issues this weekned that have made me disheartened, afraid and frustrated with my condition/self.

I recharge by connecting with my gf shes very supportive of me and my problems and im beyond lucky to have her. Ill probably just focus on other aspects of my relationship with her and put sex off the table for a couple days to get out of my head.

I love my gf so talking with her about my struggles is always great stress relief but so is sex so when I cant have it I get very frustated

1 reply
User Profile: CaringBrit
CaringBrit OP March 5th, 2019

@Name1534

Sorry to hear you've had a bad weekend erectile dysfunction must definitely be frustrating im female so can't say I relate but if I was in your shoes id feel frustrated too diet and lifestyle changes certainly helps with a lot of issues so great job you're able to manage it with that

your very lucky indeed to have such a supportive gf that's amazing she supports you with your problems

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User Profile: AffyAvo
AffyAvo March 4th, 2019

Some of my favourites unfortunately aren't always the best for me in other ways - getting out of the house and doing something fun for the mental, massage and bath for the physical, but both can leave me needing even more rest which I get frustrated with how much I need.

1 reply
User Profile: CaringBrit
CaringBrit OP March 5th, 2019

@AffyAvo aww no that must be frustrating affy something that's great self-care leaving you needing more rest

is there any other activities you could do that doesn't have any say bad add ons to it such as needing more rest

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User Profile: HobbitsandElves
HobbitsandElves March 5th, 2019

Um, hello! I'm new here! I decided to come here because recently my chronic condition has been giving me a lot of trouble. I have chronic migraines and while they're mostly under control, I had two migraines in the past week, which was a little discouraging. Also, one of my roommates refuses to acknowledge my condition and continues to do things that trigger my migraines. Anyways, here I am!

How are you all feeling this week? Tell us the good/bad/all in between.

I'm doing alright this week so far. I had a really rough week last week and ended up dropping a class that I really loved to help with my mental health. I used to really love it, but recently it's gone downhill by a lot. I'm thinking about writing an open letter to the class/program (it's a university-based, student-run film studio) about why I left so that this doesn't happen again to someone else, but I'm still debating that.

Since I dropped the class though, I've been so much happier and I even went to see a therapist. I'm seeing him every other week and it seems like it's gonna help a lot.

What is your favorite Self-care method to turn to when you need to recharge?

I meditate and I read books. I also do yoga, but more as a workout than a recharge/self-care thing. I also journal and write short stories. I'm working on a novel right now, but it always seems to slow down during the semester. Maybe I'll go on vacation this spring break and work on it a bit more.

Why is this your favorite Self-care method?

These are my favorite self-care methods because they really help me focus on something else entirely and reframe my thoughts so I can tackle the actual problem at hand instead of just symptom management.

1 reply
User Profile: CaringBrit
CaringBrit OP March 6th, 2019

@HobbitsandElves

Heyy there it's awesome to see you here Hobbits xd I'm sure you know me from another Subcom Welcome to the Disability Community if you wish to know when new Check-Ins are posted you can get yourself added to the tag list above by clicking a link and filling the form in.

oh no chronic migraines ouch and how inconsiderate of your roommate may I ask whos in charge of the tenancy agreement for the place like incharge of where you stay

Glad to hear so far this week your doing alright aww no for last week though and dropping out of a class that you loved what has you feeling set back on writing the letter giving them feedback isn't a bad thing

yayy that dropping it has helped you feel better that's a plus, oo how did it go with the therapist all great news I hope

awesome Self-care methods journalling is awesome and oo writing a novel that's awesome what you called it

being able to focus on something due to a self-care method is really good glad to hear that

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User Profile: Olivegarden1
Olivegarden1 March 9th, 2019

Hey everyone, I hope youre doing well. I think I checked in here aaages ago. But basically, I have a fair few health issues. I have hydrocephalus which is where fluid isnt drained from my brain properly. I have a device in to help that but I get bad migraines and occasionally it gets blocked.

Then I also have really bad eyesight. That excludes me a lot because I cant go out after a certain time of day, I have to use magnifiers etc and still cant see sometimes. I also have asthma so I have to take inhalers. Ive been told my breathing is loud which is kind of embarrassing 😂

If all of that wasnt isolating enough, Ive recently been diagnosed with a cyst, fibroids and endometriosis. The pain that I get is terrible even on medication. And Im now at home most of the time.

This week has been a bad one because Ive been in so much pain. I havent been able to go out and just enjoy myself in months and its making me feel down. And I generally feel like Ive missed out on so much of life with all of my health problems. Im 28 and have never had a part time job away from my parents. My whole life is on hold and I dont know what my future will be like honestly 😢

1 reply
User Profile: CaringBrit
CaringBrit OP March 9th, 2019

@Olivegarden1

oh no sorry to hear that that condition sounds extremly scaryand migraines are awful too oh dear thats alot to cope with and isolation is awful hugs if youd like one

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User Profile: HydrangeaField
HydrangeaField March 10th, 2019

Would you belive I'm still fighting the stomach bug? I went for a walk around the block, and took two breaks, but I still got queasy last night, and a little today. If it wasn't for those breaks, I probably would have thrown up. I'm glad I didn't, but it's just so weird that after two months I'm still dealing with this. :/

2 replies
User Profile: CaringBrit
CaringBrit OP March 10th, 2019

@HydrangeaField oh wow 2 months have you seen a doctor about that hydra

1 reply
User Profile: HydrangeaField
HydrangeaField March 10th, 2019

@CaringBrit I did near the end of January. She said it was because of my weakened immune system that it's taking so long to beat, and I was given some nausea medicine so I don't throw up anymore. It's worked so far, but I've been too nervous to walk any further than I have.

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