Anyone here have struggles with talking as in a speech disability ?
I'm looking to get some support of to find out how I can handle people like family members who don't understand my speech isn't an easy fix and I'm so tired of certain family members complaining about it because I tell them I can not get it fixed it won't be ever fixed and they like never say never . I'm tired of it as it's something I have tried to change and improve but instead they are like oh your speech is getting worse so get speech therapy so I tell them I have seen more than 25 speech therapist for more than 10 years so I'm like when will my speech get better and how can more speech therapy help me when you say my speech is getting worse ?
I even went to a ENT to get my voice box checked out hoping that maybe something was on it that could get it removed so speech would be better or to show like voice box freezing during talking like to go oh I'm getting voice paralysis to maybe get those people to be able to be quiet about my speech issues if they knew a disorder of the cause of why my speech is getting worse but oh no that wasn't the case as I was normal in that area! I then went to get a Endoscopy maybe hoping that there was something down there that is the cause of my speech issues but nope it was just normal except for a small hiatal hernia I have and a loose espoghael valve I have due to the hiatal hernia but supposedly that not the cause of my speech issues.
So I don't know how to get it thru them because they think by pointing it out continously and complaining about it is being helpful but instead it's being hurtful and they don't realize how hurtful it is .
It's like they think I don't see the problem or am in denial of a problem so they continous to say you need to get it fixed which it's like I think they don't really believe me how many speech therapist I have seen or how many years I have gone to speech therapy because it's like they can't be able to believe that speech therapy isn't helping me so I think they think I haven't gone to any .
This is something I struggled with quite a bit acutely leading up to my HAE diagnosis. It is something that I have had my entire life, but was especially bad for about the year before on and off. Now, it's infrequent but I have had to do with those in the emergency room and communicate well when it's so difficult to speak.
I'm lucky in that it's not an ongoing issue. It was quite difficult dealing with phone calls though (include those with my ENT, ironic that they often didn't give me other options other than phone calls) when it was so difficult to form words that could be made out by others.
I'm sorry you're not getting much support from those in your daily life. I hope you're able to get it figured out!