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Getting used to a diagnosis

User Profile: Gracegrace1
Gracegrace1 December 28th, 2019

I dont know if this is the proper forum to post this, but I suppose I dont know where else I would. After several years of being extremely vitamin deficient, I have recently been diagnosed with Celiac disease. Part of me was glad; I was struggling just to keep my vitamin B12 levels above zero which was causing side effects like anemia, fatigue, numbness in my hands, etc. On one hand, I am happy that I have something that can so easily be fixed. I just dont eat gluten. But on the other, I am struggling with this diagnosis. I was sad not only about all the food I couldnt eat any more for the sake of my health, but so worried about how it will affect my social life. Im already a quiet natured person and I dont want to be that friend that cant eat at many restaurants with them or the friend that can have a beer with them. My friends are all in healthcare so they are very understanding but I still hate to be that person that everyone has to make plans around. It sounds so silly writing it out, but its a large part of the social life where I live. I think the worst part is that when I expressed these concerns to my doctor, he told me I was lucky and that a lot of people are probably jealous that I have Celiac (since being gluten free is such a fad now). Im trying to adjust to this but no one around me has any better advice than youll get used to it. I know I will but I havent yet.

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User Profile: adventurousBranch3786
adventurousBranch3786 December 28th, 2019

@Gracegrace1 Hi I struggle with some of these things also(with a different illness). Although I don't have the answers I just wanted to let you know that you are in the right place and that you are not alone.

User Profile: Magiclifebloom
Magiclifebloom December 30th, 2019

@Gracegrace1 hey I know it's hard, especially a new diagnosis that involves diet. I don't like taking about mine because I know people are freakishly aware of it. Their hearts are in the right place, try to be patient with yourself