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30 day chronic illness challenge

November 16th, 2015



I don't have any chronic illnesses, but I think this might be fun for those who have them. :)

433
User Profile: peacefulSoul8
peacefulSoul8 February 7th, 2016

Day 10: Saying no and learning to stop comparing myself to everyone else. Taking things slow and to stop beating myself up for being behind fitness wise.

User Profile: princess05
princess05 February 7th, 2016

Day 3) I was diagnosed with cerebral palsy be a neurologist and for diabetes I was diagnosed by an endocrinologist.

User Profile: AffyAvo
AffyAvo February 7th, 2016

Day 12

The obvious attacks are probably obvious to healthy people. It's easy to imagine the pain and discomfort of say a hand that swells to twice it's size.

With attacks the ones that aren't visible are harder to relate to. There's often pain and discomfort. There's often the problem of help with getting treatment if home treatment isn't being done for the attack. In the emergency room doctors often have issues understanding the serious nature of something that is not seen and then when a medication is not familiar to them. There's the fear that comes with bad attacks. PTSD is actually quite high in people with HAE specifically due to attacks and poor medical treatment.

With non-obvious attacks there's the questioning of the issue. Do I have a UTI or a urinary tract swell? Is it a migraine or a brain swell? Is it just a cold or am I also having a throat attack along with the sore throat related to the virus?

These feelings also go to other attack stages. Are my emotions just typical emotions or is this a sign that an attack is coming? The little odd symptoms people normally brush off start to become questioned. Do my feet have a slightly odd sensation that's normal for being on them for a while or is this a warning sign of an attack? Is it just dry air or is my throat going to swell?

Then there are the more constant issues unrelated to having an attack that moment. Feeling tired all the time. Having to significantly restrict how many activities I plan for myself. Planning things around my medication, or for bigger events looking at my every 3-4 days medication schedule and tweaking it or deciding if I should throw in an extra dose. Debating about how risky something is. If I want to travel, is it going to be when I'm already dealing with enough triggers where the pressure changes are going to lead to an attack while in flight? Do I have enough medication to get through something? Is it safe for me to sleep right now or do I need to monitor my airway? Will the next attack be really bad? Will the next IV start go easily? What if I have an attack, can I self-administer the medication? If I end up going to the ER will I get there in time and will they give me my medication in time?

User Profile: MonBon
MonBon February 8th, 2016

Day 6:

I don't think I would have said anything. Things I could have said? It's not the eyesight, keep pushing it with doctors, you don't have to become an insomniac, but, I don't think I would.

User Profile: baZzchik54
baZzchik54 February 9th, 2016

day6) Perhaps I would've been nicer to myself, take more care. Realize that I am only as strong as my vessel, and that vessel is very Important...

User Profile: princess05
princess05 February 9th, 2016

Day 4) My family and friends don't treat me any different; to them I am their family member or friend heart

User Profile: baZzchik54
baZzchik54 February 9th, 2016

So far in this journey the biggest realization I've had is that I simply "Cannot" do everything!!

User Profile: AffyAvo
AffyAvo February 9th, 2016

Day 13

It's absolutely had an affect on my mental health.

The most direct link is how mood changes can be a prodromal symptom for attacks. Suddenly feeling angry or upset about something is one of my most common prodrome signs. I picked up on these at times before connecting them to anything specific. I just knew something was wrong and guessed it was related to hormones or something.

There's also the down days with feeling sick. I really think I would have developed clinical depression if I hadn't done things to take care of myself mentally. There's the fear and anxiety that comes with a serious illness too.

User Profile: Dillion
Dillion February 9th, 2016

Day 9: Have you tried any alternate therapies? If so, what? Did they work?

Yes, I have tried massaging the area on my palm to relieve the migraine, it worked some, but there are still some pain associated with the migraine after I finished.

User Profile: AffyAvo
AffyAvo February 9th, 2016

Day 14

Having a great husband who has been supportive

Getting diagnosed without needing to be hospitalized for a bad throat swell or having surgery

Having a specialist who doesn't just stick with the recommendations, he recognizes that medicine needs to be individualized and that I do know my own body fairly well

Having a medication that as much as I hate using it works really well for me with minimal side effects from the medication itself and considering the cost that it's free

Being able to get massages from a great RMT. I think treating my soft tissue issues prevents some attacks. Massage itself can be a trigger if it's too hard. She's great at knowing my body, while she does check in to be certain we click well. She seems to get the amount of pressure I can handle without me saying anything.