International MPS Awareness Day

Today is international MPS awareness day. I have MPS disease type one. It's basically storage enzymes  that are suppose to recycle GAG aka complex sugar molecules in different cells. Since I don't have the correct enzymes this means different parts of my body such as my liver, lungs, or stomach can get damaged overtime.#notcool   

I receive enzyme replacement therapy. It helps my body to function, stay healthy and be well. Although having this disorder can be difficult, I'm thankful for all the amazing people it has brought into my life. There is so much research going on, seeking new, better treatments and ultimately a cure for my disease and many others.  Whether you have a rare disorder or not our health matters and it's important to seek medical help and also to remember we're not alone. Let's all shine a bright light together 😊💪💜🖤

https://mpssociety.org/ If you'd like more information please visit the MPS society website. Rock on!