Bartter Syndrome

Both my toddler’s age 5 and 7 boys have this extremely rare metabolic genetic disorder.

Bartter syndrome

Because it affects approximately 1 in 1,000,000 individuals, converting this frequency into a percentage results in an incredibly small number

Global Breakdown: In a total global population of roughly 8 billion people, a 0.0001% prevalence means only about 8,000 people worldwide live with this condition.

Are there any other families experiencing the same condition? Looking for any support. Community. Especially now that I’m a single mother.