Things People Who Have Long COVID Wish You Knew
If this is part of your life story, please share your insights! What would you like the rest of us to learn? What should we know about people in this community? How would you like people to interact with you? Should people ask questions? What’s the best way for people to learn about this? Do you have any resources (books, movies, YT videos, etc) that will give us greater understanding and empathy and kindness toward people who experience the same things you do?
If you’re not on this journey, we welcome you to listen, learn, and ask respectful, good-faith questions! Open-ended questions are highly encouraged, as they give people the space to share their unique experiences in their own words. While this is a safe space to learn about things you’ve never experienced, please remember to be sensitive, and avoid sharing harmful stereotypes or debating someone's lived reality. If you have a question, ask it with empathy. If someone gently corrects you, please be open to learning. Let's have a gentle, fun, friendly conversation where we support one another, because it takes all sorts to make a world!
@ShadowFaerie @unassumingEyes @Sunisshiningandsoareyou @sadcat13 @Amanda84 @goldenduckling @mytwistedsoul @Tinywhisper11 @LovemyMoonflowers @GreenLime3141 @7Bear7 @Phoenixthepoised @Torean @GentleHealingInitiative @cyanessence @YourCaringConfidant @CaringEzra @NobleSeeker @fossilfellow @BastionKnight @trueconfidant123 @safeplace288 @lovingCat6978 @reservedOwl321 @dapperNest2125 @Creamyyy @naturesbeauty1234 @bubbleSummer9800 @warmheartedHuman836 @Mansbestfriend @Paliloveyourself @Magicpawsoffuture @SelfCareMatters @sabeyesofblue3535 @AiluraTheCat @charmingApple8098 @luvArisu @BlueDarkAurora @curiousbookishness @sympatheticPlace3743 @musawva @KindleMissie @WellsFiction @Angelanj @SlappyMcGee @SunshineJazz @LexListens2025 @Heather225 @agreeableSkies9889 @HopeAura @rainbowBridge46
I’m adding a taglist to start, but this post is open to absolutely everyone! <3
@jesusredeemedme2425
Thanks for the tag ❤️
@jesusredeemedme2425 Looking forward to this thread 💜
@jesusredeemedme2425
My parents have it.
And no, contrary to popular belief.
It's not made up.
They don't have the same appetite or energy levels anymore and they also pick up infections so much easier.
And they are nearly always dismissed as being dramatic which is the most annoying and hardest part to take! 🩷
@Amanda84
@fossilfellow
💛
@Amanda84. They are lucky to have you a family member who believes them. It means a lot!
@adventurousBranch3786
Your kind words mean alot to me 🩷
I'm a care taker for my sibling and they have it. Its destroyed so much of their life. The health of their body. So many new health conditions have popped up since having covid. They have made the best of it but doesn't mean it isn't hard. Its hard to see the after math of covid on a loved one.